Neurofibromatosis has no cure, so it is recommended to monitor the patient and perform annual tests to assess disease progression and risk of complications.
In some cases, neurofibromatosis can be treated by surgery to remove tumors, but surgery does not prevent lesions from reproducing.Learn to recognize symptoms of neurofibromatosis.
- Treatment with neurofibromatosis is indicated when tumors grow too fast or when they cause cosmetic changes; for example.
- Your doctor may order surgery to remove tumors that put pressure on your organs or radiation therapy to reduce the volume of tumors.
While surgical treatment promotes the elimination of lesions, it does not prevent the appearance of new tumors, so neurofibromatosis has no cure and therefore has no specific treatment.
If the patient has other symptoms, such as developmental or growth problems, balance difficulties or skin problems, for example, it is important to be accompanied by specialized professionals, such as a physical therapist, osteopath, speech therapist or psychologist.
In the most severe cases, where malignant tumors occur and the patient develops cancer, surgery may be needed to remove the tumor and radiation therapy or chemotherapy after surgery, to reduce the risk of recurrence.Cancer.
Since there is no specific treatment for neurofibromatosis, it is recommended that the person undergo annual check-ups to check if the disease is controlled or if there are complications. Therefore, it is recommended that a skin exam, an eye exam, a bone exam, an exam to assess development and skills such as reading, writing or comprehension are recommended.
In this way, the doctor evaluates the progression of the disease and guides the patient in the best possible way.
Genetic counseling is important for those who want to have children, as genetic inheritance from parents to children is very common.Understand what genetic counseling is and how it’s done.